Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2025

# Summary: Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2025 This bill would increase federal funding and support for research, prevention, and treatment of sickle cell disease and other inherited blood disorders. The legislation would likely establish new programs within federal health agencies to advance medical research, improve surveillance (tracking) of these conditions, and expand access to preventive care and treatments. It would affect patients with these conditions, medical researchers, healthcare providers, and public health agencies responsible for monitoring disease trends. The bill is currently in committee, meaning it has been introduced but has not yet been debated or voted on by the full Senate.

Sponsored by Senator Tim Scott (R-SC), the legislation focuses on hereditary blood disorders that disproportionately affect certain populations, including sickle cell disease, which is most prevalent in African Americans. Key areas of focus include supporting scientific research to develop better treatments, creating systems to track disease prevalence, and promoting preventive health measures. The bill has not yet been enacted into law.